RADeep European Mapping of PKD, SCD and THAL

RADeep has created a European repository of centers dealing with rare anaemia disorders (RADs). The objective is to increase the searchability and findability of RADs expertise while engaging research between experts. The mapped RADs are Pyruvate Kinase Deficiency (PKD), Sickle Cell Disease (SCD), and Thalassaemia major and intermedia (THAL). A total of 129 centres from 15 European countries are included in this ongoing mapping exercise. If your center is willing to participate, please contact: coordination(ELIMINAR)@radeepnetwork.eu

Pyruvate Kinase Deficiency 

  • European Total Results:

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
             15              84                   168                 310               483


Sickle Cell Disease

  • European Total Results:

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
           15             126                   9.413                 11.214                 20.627

Thalassaemia

  • European Total Results:

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
              15             126                   2.135                6.274               8.409

Euro Blood Net