RADeep European Mapping of PKD, SCD and THAL
RADeep has created a European repository of centers dealing with rare anaemia disorders (RADs). The objective is to increase the searchability and findability of RADs expertise while engaging research between experts. The mapped RADs are Pyruvate Kinase Deficiency (PKD), Sickle Cell Disease (SCD), and Thalassaemia major and intermedia (THAL). A total of 127 centres from 15 European countries are included in this ongoing mapping exercise. If your center is willing to participate, please contact: maria.rodriguez.sanchez@vhir.org
Pyruvate Kinase Deficiency
- List of centres by country, contact person, and detailed information of the mapping
- European Total Results:
| Number of Countries | Number of Centres | Number of Paediatric Patients | Number of Adult Patients | Total Number of Patients |
|---|---|---|---|---|
| 14 | 81 | 170 | 312 | 487 |
Sickle Cell Disease
- List of centres by country, contact person, and detailed information of the mapping
- European Total Results:
| Number of Countries | Number of Centres | Number of Paediatric Patients | Number of Adult Patients | Total Number of Patients |
|---|---|---|---|---|
| 14 | 118 | 9.413 | 11.212 | 20.625 |
Thalassaemia
- List of centres by country, contact person, and detailed information of the mapping
- European Total Results:
| Number of Countries | Number of Centres | Number of Paediatric Patients | Number of Adult Patients | Total Number of Patients |
|---|---|---|---|---|
| 15 | 119 | 2.135 | 6.227 | 8.362 |