RADeep European Mapping of PKD, SCD and THAL

RADeep has created a European repository of centers dealing with rare anaemia disorders (RADs). The objective is to increase the searchability and findability of RADs expertise while engaging research between experts. The mapped RADs are Pyruvate Kinase Deficiency (PKD), Sickle Cell Disease (SCD), and Thalassaemia major and intermedia (THAL). A total of 127 centres from 15 European countries are included in this ongoing mapping exercise. If your center is willing to participate, please contact: maria.rodriguez.sanchez@vhir.org

Pyruvate Kinase Deficiency 

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
             14              81                   170                 312               487


Sickle Cell Disease

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
           14             118                   9.413                 11.212                 20.625

Thalassaemia

Number of Countries  Number of Centres Number of Paediatric Patients Number of Adult Patients Total Number of Patients
              15             119                   2.135                6.227               8.362

Euro Blood Net