RADeep disease specific Scientific Boards

Scientific Boards

RADeep Scientific Boards are established for adapting RADeep's Study protocol and expanding the common data elements for rare anaemia disorders (CDE-RAD) according to disease specific needs.

Scientific Boards include experts on prevention, diagnosis and clinical care of the specific diseases, researchers, and national coordinators for data gathering. The Scientific Board for Pyruvate Kinase Deficiency has already been established as the first disease-specific arm being implemented. 

Scientific Boards for Sickle Cell Disease and Thalassaemia will be soon available. 

Euro Blood Net